Dear Audy,
Me writing twice in two days can only mean one of two things...either something particularly exciting has happened, or something particularly painful has happened...sigh...unfortunately today it is the latter.
This clip is me talking briefly about what happened when I had to wait in the Centrelink line yesterday. I was standing with a crutch, but apparently that was not enough for the great gods of yesterday's fortune!
I realise that you can't actually see the RSD affected areas in this clip, however the point was more to highlight how quickly one's condition can change. For this reason, it makes it incredibly difficult for sufferers to keep jobs and other commitments. We can make plans, but we always know there is a chance we'll have to drop them at the last minute because our body gives out on us...it is awfully frustrating!! This is also frustrating for our friends, who can sometimes find it hard to understand why we can't always do what we said we could, or who might feel as the person with RSD is exaggerating their symptoms because of some other personal conflict. Stress can make the pain worse, for this reason it can also appear like the RSD sufferer is reporting mental stress as physical pain when this is not the case, the mental stress actually sets off the physical pain. Not unlike regular people suffering from tension headaches or raised blood pressure.
I am still in a lot of pain today. The sharp pains are creeping higher up my back than I have known them to before...so woo hoo, it looks like if I need to leave the house I am going in the wheelchair again...sigh. I can't wait till next week when they will pump me full of ketamine and disconnect this stupidly excessive firing from my nerves to my brain...and hopefully they won't reconnect themselves afterward!!
Love & Horizontal Healing,
Caf
5 comments:
wishing you the best
Hi there Caf!
I'm another blogger suvivor of rsd (isn't it just an awesome condition NOT). I like your outlook on life, you sound a very positive person. I am going to say I am awesome enough to be your audience lol, if you will have me?
You can check out my blog, I write a whole load of randomness, a lot is influenced by rsd, some is not. Anyways, I wanted to wish you all the best for your upcoming ketamine infusion...I am so obsessed with ketamine I even did my drug assignment on it lol. Dont expect to get to try it though...
Take care and say hi if you have time!
Felicia
Hi Caf;
Thanks for this informative video blog about your debilitating illness. You are courageous and creative.
I have never heard of this illness. It has to be devastating. Is it a form of arthritis? Do you suffer with Chronic Fatigue Syndrome as well? Has it, only recently, been named?
Your description sounds exactly like my first encounter with arthritis. However, I was not diagnosed with Reflex Sympathetic Dystrophy. Nevertheless, I certainly had all the symptoms. I rarely have those symptoms anymore. But, I do have others that are just as debilitating.
Take care of yourself. I am sending positive healing energy your way.
Hi, Caf! I would love for you to link me on your blog! I have to figure out how to do that myself...
I had a ketamine infusion at the end of this past April. I really hope yours gives you some relief. I will be thinking about you and praying for your recovery. If you have any questions about what to expect, let me know!
Hello Caf, you are an inspiration. Keep blogging about RSD you educate ur readers through it.
Get well soon my friend.
God Bless!
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